parents with children with disabilities

Pushing a Bigger Button

Friday, November 16th, 2012 Posted in Fundraising | No Comments »

I would be lying if I didn’t admit that it is sometimes very frustrating to run a charity designed to help kids with challenges.

Too often it seems, those kids are forgotten.

Cerebral Palsy (CP) in particular seems to be a forgotten condition when it comes to identifying “those in need,” but it is certainly not alone.

CP is just not a big button, as I like to call it. It’s not cancer. It’s not autism. It’s (usually) not tragic.

But.It.Is.Everyday! – Just like autism, and just like cancer.

(Please note * I do not mean to diminish the very serious nature and need for support for cancer and autism causes.)

Last summer at Golf for Joy I made a plea to those in attendance that if they took anything away from that day it was just that.

The conditions that affect the kids we try to help are very much like the traffic that we are all encountering now as we travel through Columbus each day – a little bit different, a new set of roadblocks each day, a concrete tunnel which seemingly never ends.

We have a new joke this year that if you put the word “adaptive” in front of some piece of equipment, it’s price automatically raises into the thousands of dollars.

Unfortunately – It’s not so much a joke. In fact, it’s very much a reality. Not funny at all.

Of course, it’s not just the kids who have to deal with these issues.

So many parents fight tirelessly, day after day, caring for their children and their loved ones, trying to maintain some sense of…

Heck, I think we can say it – normalcy.

Which really…

Is impossible.

Very often when my wife and I talk about the 15 months we had with Meghan Joy we note that really…we don’t remember all that much. Very much like the sports cliches you hear so often –

We took one second, one minute, one hour, one day at a time- trying to move forward as much as we could–

I think that part of the reason we continue The MJB Foundation is because we know that struggle. We know that fight. We know what it is to want to feel normal – and we want to help those who are still in the fray.

This year, for the first time ever – The MJB Foundation is nearly tapped out. To date, because of the generosity of our supporters, we’ve been able to give Gifts of Joy totaling $11,041.31 to children with challenges this year, and we’re committed to what might be as much as $6,000 more. (Some of the equipment has to be fitted so there could be some cost variance.)

To put this in perspective – Our events this year raised right around $7,000.

While it’s true that we are giving away more this year than any other, and we had a little bank to spend – it’s also true that more and more families are finding out about us, and more and more kids will need our help.

But we don’t have that big button, and well, we need a big push.

I always said that being at this point is a problem I’d like to have, but I have to admit it scares the holy bejeesus out of me.

But not as much as the day-to-day might scare the holy bejeesus out of those families, and those kids.

So the takeaway is this…

I don’t honestly know how many people read this blog, but I will admit to knowing at least some eyeballs give it a glance every now and then.

So… If you have a second, if you’re so inclined, I would really appreciate it if you could help us spread the word, and let people know that we’re trying to help those kids, and we could use all the help we can get to make this button bigger.

 

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A Good Time is Had by All

Thursday, June 23rd, 2011 Posted in Events | No Comments »

We are just days away from our 17th annual Golf for Joy. As many of you know I play hockey with a great group of fellas who are also very enthusiastic supporters of The MJB Foundation.  Last night, post game I asked a few of the guys who are coming out this year to take a few minutes to talk about Golf for Joy.

As you can see we always have a lot of fun and it is a great group of guys.

While the field is set for this year’s tournament we still want to extend an invitation to anyone who would like to join us for our post tournament gathering where we’ll tell plenty of stories, share plenty of laughs and talk about why we all get together every year – all while raising money for a great cause.

We’d love to have you join us!

Oh and, while the current Bail Bonds team does not have a current website, we are certain we have fans. (or wives and kids anyway) If you’d like to learn a little more about the team feel free to check out our first attempts at websites here and here.

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Grandma’s Invitation

Tuesday, January 25th, 2011 Posted in Events | No Comments »

Today, Meghan’s Grandma shares her memories and offers her invitation to Bowl for Joy.

Without further adieu.

Hi! I am the grandmother.  I was there 18 years ago February 5th for the birth of the twins.  Funny the birth was an emergency C-section which should have taken just a few minutes.  Those of us waiting kept going to the window of the nursery and looking for the baby. (They didn’t know it was twins.)  The stupid people in the nursery kept saying “Oh you mean the twins.”  “NO! Not the twins!!”  Finally I could stand it no more and went to the back by the delivery rooms.  There I met the doctor who had come for the surgery.  He explained to me how one of the twins was healthy and pinked up right away but the other was in jeopardy!

So, here we were.  Looking in the window, finally, at the twins!  Kailey was great! (As you all know her to be.)  Meghan was still, on a respirator and not expected to live the night.  Hard to believe it was 18 years ago.  The heartbreak comes back like it was yesterday.

Having a handicapped child is tiring, frustrating, rewarding, joyous, sad, all the emotions you can name.  Losing that child is a tragedy.  During her short life Meghan had the love and devotion of a lot of people.  Her family was able to provide her with the special equipment she needed to function.  How different it would have been if that ability was not there.

The MJB Foundation raises money to assist parents of handicapped children with the ability to provide special equipment; a special tricycle, money towards a special wheelchair, etc.  The money is raised by activities that are family friendly.  A special family works hard on the activities of the MJB to keep the spirit and joy of their daughter alive.

Please join us February 12, 2011 at Sawmill Lanes, 4825 Sawmill Road for Bowl for Joy!  Teams of 5 can bowl together.  $30.00/person and the money goes for that special equipment for those special kids.

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One more day to Golf for Joy 2010

Friday, June 25th, 2010 Posted in Uncategorized | 1 Comment »

A little shout out to the folks who don’t golf, who wonder why we invite them every year even when we know they don’t golf.

It’s not a secret really, we just want you to come to the party and have a good time.

The party lasts all day, but the post tourney gathering usually starts around 4:30 or 5:00. Everybody is welcome!

Golfers – don’t forget we tee off at noon. Registration starts 11-ish. Range balls are included in your entry.

Thanks for helping us share our Joy.  Hit ’em straight!

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