resources for families with children with disabilities

Pushing a Bigger Button

Friday, November 16th, 2012 Posted in Fundraising | No Comments »

I would be lying if I didn’t admit that it is sometimes very frustrating to run a charity designed to help kids with challenges.

Too often it seems, those kids are forgotten.

Cerebral Palsy (CP) in particular seems to be a forgotten condition when it comes to identifying “those in need,” but it is certainly not alone.

CP is just not a big button, as I like to call it. It’s not cancer. It’s not autism. It’s (usually) not tragic.

But.It.Is.Everyday! – Just like autism, and just like cancer.

(Please note * I do not mean to diminish the very serious nature and need for support for cancer and autism causes.)

Last summer at Golf for Joy I made a plea to those in attendance that if they took anything away from that day it was just that.

The conditions that affect the kids we try to help are very much like the traffic that we are all encountering now as we travel through Columbus each day – a little bit different, a new set of roadblocks each day, a concrete tunnel which seemingly never ends.

We have a new joke this year that if you put the word “adaptive” in front of some piece of equipment, it’s price automatically raises into the thousands of dollars.

Unfortunately – It’s not so much a joke. In fact, it’s very much a reality. Not funny at all.

Of course, it’s not just the kids who have to deal with these issues.

So many parents fight tirelessly, day after day, caring for their children and their loved ones, trying to maintain some sense of…

Heck, I think we can say it – normalcy.

Which really…

Is impossible.

Very often when my wife and I talk about the 15 months we had with Meghan Joy we note that really…we don’t remember all that much. Very much like the sports cliches you hear so often –

We took one second, one minute, one hour, one day at a time- trying to move forward as much as we could–

I think that part of the reason we continue The MJB Foundation is because we know that struggle. We know that fight. We know what it is to want to feel normal – and we want to help those who are still in the fray.

This year, for the first time ever – The MJB Foundation is nearly tapped out. To date, because of the generosity of our supporters, we’ve been able to give Gifts of Joy totaling $11,041.31 to children with challenges this year, and we’re committed to what might be as much as $6,000 more. (Some of the equipment has to be fitted so there could be some cost variance.)

To put this in perspective – Our events this year raised right around $7,000.

While it’s true that we are giving away more this year than any other, and we had a little bank to spend – it’s also true that more and more families are finding out about us, and more and more kids will need our help.

But we don’t have that big button, and well, we need a big push.

I always said that being at this point is a problem I’d like to have, but I have to admit it scares the holy bejeesus out of me.

But not as much as the day-to-day might scare the holy bejeesus out of those families, and those kids.

So the takeaway is this…

I don’t honestly know how many people read this blog, but I will admit to knowing at least some eyeballs give it a glance every now and then.

So… If you have a second, if you’re so inclined, I would really appreciate it if you could help us spread the word, and let people know that we’re trying to help those kids, and we could use all the help we can get to make this button bigger.

 

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Golf for Joy 2011 Flashback

Wednesday, April 25th, 2012 Posted in Events, History | No Comments »

Working on a lot of Golf for Joy and MJB Foundation business this week, thinking about last year’s tournament and what great success we had. Check out our guest speaker, former Ohio State Buckeye receive Bobby Olive talking about courage, and heart, and Meghan Joy.
(Bobby comes on about 2:25 with an introduction by Keith Hughes from Paetec, one of our sponsors.)

We are really looking forward to this year’s tournament on June 30th at Foxfire Golf Club.

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Grandma’s Invitation

Tuesday, January 25th, 2011 Posted in Events | No Comments »

Today, Meghan’s Grandma shares her memories and offers her invitation to Bowl for Joy.

Without further adieu.

Hi! I am the grandmother.  I was there 18 years ago February 5th for the birth of the twins.  Funny the birth was an emergency C-section which should have taken just a few minutes.  Those of us waiting kept going to the window of the nursery and looking for the baby. (They didn’t know it was twins.)  The stupid people in the nursery kept saying “Oh you mean the twins.”  “NO! Not the twins!!”  Finally I could stand it no more and went to the back by the delivery rooms.  There I met the doctor who had come for the surgery.  He explained to me how one of the twins was healthy and pinked up right away but the other was in jeopardy!

So, here we were.  Looking in the window, finally, at the twins!  Kailey was great! (As you all know her to be.)  Meghan was still, on a respirator and not expected to live the night.  Hard to believe it was 18 years ago.  The heartbreak comes back like it was yesterday.

Having a handicapped child is tiring, frustrating, rewarding, joyous, sad, all the emotions you can name.  Losing that child is a tragedy.  During her short life Meghan had the love and devotion of a lot of people.  Her family was able to provide her with the special equipment she needed to function.  How different it would have been if that ability was not there.

The MJB Foundation raises money to assist parents of handicapped children with the ability to provide special equipment; a special tricycle, money towards a special wheelchair, etc.  The money is raised by activities that are family friendly.  A special family works hard on the activities of the MJB to keep the spirit and joy of their daughter alive.

Please join us February 12, 2011 at Sawmill Lanes, 4825 Sawmill Road for Bowl for Joy!  Teams of 5 can bowl together.  $30.00/person and the money goes for that special equipment for those special kids.

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Bowl for Joy Weather Watch

Tuesday, March 2nd, 2010 Posted in Uncategorized | No Comments »

Note: This post is cross posted at The Life of Jimmer as Neither Rain nor Sleet nor Snowpocolypse 2010.

Sitting in my office watching the snowfall tonight and wondering just what kind of impact it is going to have on our very first Bowl for Joy tournament tomorrow.

In 15 years of  The MJB / Golf for Joy we’ve had one 10 minute rainstorm, and one rain shortened tourney that didn’t happen until our 14th year.

First year of Bowl for Joy…

I’m looking at Snowpocalypse 2010. Well, that’s what they’re calling it around here it seems.

We sort of fumbled things with the rain in our 14th year. I guess Mother Nature decided we needed to be tested right out of the box in our first year of Bowl for Joy.

That’s okay. I can handle it. I know that a lot of folks are waiting for me to make the call. Some are probably wondering why I haven’t called things off already. After all the forecasts…

Are exactly that – forecasts. I deal with what I can see when I need to see it. Right now, I don’t need to see anything. It’s not like anybody is catching a plane to be here. Our furthest travelers are coming from the Cincinnati area. They will have plenty of notice.

I’m also a bit of an optimist when it comes to weather. Kind of like this guy:

USGA Rain (2003)

Don’t worry, I’m also well aware that this isn’t all about me. In fact it’s not about me in any way shape or form. I get that.

I’ll be up early in the morning tomorrow. No, that doesn’t happen very often on my day off, but I know I have a responsibility to our attendees, and I take that very seriously.

Keep an eye here for updates. They’ll be here when you need them.

In fact: Here is our latest update now from a member of our board. I’d hold him to this. I plan to… ;-)

As of 10:32 p.m. today:

The Bowl for Joy is ON!!! The major streets are clear and will be clear in the morning. Sawmill Lanes is at Bethel and Sawmill, two of the major streets on the NW side. There will be no problems getting there from 315 or 270. Just leave 15 minutes earlier than you planned. I will even buy you a “I Made It To The MJB” celebratory beer. This thing is on.

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